The National Database for Autism Research (NDAR) is an NIH-funded research data repository that aims to accelerate progress in autism spectrum disorders (ASD) research through data sharing, data harmonization, and the reporting of research results. NDAR also serves as a scientific community platform and portal to multiple other research repositories, allowing for aggregation and secondary analysis of data.
The rules defining this concept are
NIMH Guide Notice NOT-MH-09-005
NDCT is an informatics platform for the sharing of human subjects clinical trial data funded by the National Institute of Mental Health. Beginning with applications received in June 2014, all clinical trials are expected to share their data and results, both positive and negative. In addition to these trials going forward, NDCT also makes available many of the legacy clinical trials funded prior to June 2014.
NIMH Guide Notice NOT-MH-14-015
RDoCdb is an informatics platform for the sharing of human subjects data generated by investigators as part of the NIMH's Research Domain Criteria initiative, and to support this initiative's aims. It also accepts and shares appropriate data related to mental health from other sources.
The ABCD Data Repository houses all data generated by the Adolescent Brain Cognitive Development (ABCD) Study. The ABCD Study is supported by NIH partners (the National Institute on Drug Abuse, the National Institute on Alcohol Abuse and Alcoholism, the National Cancer Institute, the Eunice Kennedy Shriver National Institute of Child Health and Human Development, the National Institute of Mental Health, the National Institute on Minority Health and Health Disparities, the National Institute of Neurological Disorders and Stroke, the NIH Office of Behavioral and Social Sciences Research, and the NIH Office of Research on Women’s Health), as well as the Centers for Disease Control and Prevention – Division of Adolescent and School Health. This repository will store data generated by ABCD investigators, serve as a collaborative platform for harmonizing these data, and share those data with qualified researchers.
Fast Track imaging data from 2,119 subjects are currently shared in the ABCD Repository.
The NIMH Data Archive provides the infrastructure for the sharing of data generated by the Adolescent Brain Cognitive Development Study (ABCD). Data are expected to first be shared in late 2017.
The Connectome Coordination Facility (CCF) houses and distributes public research data for a series of studies that focus on the connections within the human brain. These are known as Human Connectome Projects.
The CCF currently supports 19 NIH-funded human connectome studies. Scroll down to learn more.
Author: Will Horton
Study: HCP Young Adult
Author: Jenn Elam
Each NIMH Data Archive cluster listed above accepts and shares data delineated by their relevant research communities, but their infrastructure and procedures for requesting access are shared in order to encourage interdisciplinary science and the aggregation of common data elements across communities. Please note that some NIMH Data Archive sites continue to share functionality hosted on the National Database for Autism Research (NDAR) website. If you are not studying Autism Spectrum Disorder, you may still need to use the NDAR website to access certain features.
Login to begin. Contributors may wish to review the Data Dictionary or visit their Collection in the Data From Labs section or through their profile. Researching investigators can begin or continue to examine data using the various Query tools.
To begin sharing data or request shared data, the first step is to submit an account request. Although summary data can be examined without an account, you will need to request and complete the access request process to download item-level data. To work on a project submitting data as a contributor, simply request an account and NDA staff will be in touch to begin the process.