The National Database for Autism Research (NDAR) is an NIH-funded research data repository that aims to accelerate progress in autism spectrum disorders (ASD) research through data sharing, data harmonization, and the reporting of research results. NDAR also serves as a scientific community platform and portal to multiple other research repositories, allowing for aggregation and secondary analysis of data.
The rules defining this concept are
NIMH Guide Notice NOT-MH-09-005
NDCT is an informatics platform for the sharing of human subjects clinical trial data funded by the National Institute of Mental Health. Beginning with applications received in June 2014, all clinical trials are expected to share their data and results, both positive and negative. In addition to these trials going forward, NDCT also makes available many of the legacy clinical trials funded prior to June 2014.
NIMH Guide Notice NOT-MH-14-015
RDoCdb is an informatics platform for the sharing of human subjects data generated by investigators as part of the NIMH's Research Domain Criteria initiative, and to support this initiative's aims. It also accepts and shares appropriate data related to mental health from other sources.
NIMH Guide Notice NOT-MH-15-012
The ABCD Study is the largest long-term study of cognitive and brain development in children across the United States to date. The project will recruit 10,000 healthy children age 9-10 and follow them over 10 years into early adulthood. The ABCD Repository will house data generated as part of this study. More information about the study and the institutions involved can be found at the ABCD Study page.
Fast Track imaging data from 2,119 subjects are currently shared in the ABCD Repository.
The NIMH Data Archive provides the infrastructure for the sharing of data generated by the Adolescent Brain Cognitive Development Study (ABCD). Data are expected to first be shared in late 2017.
The Connectome Coordination Facility (CCF) houses and distributes public research data for a series of studies that focus on the connections within the human brain. These are known as Human Connectome Projects.
The CCF currently supports 19 NIH-funded human connectome studies. Scroll down to learn more.
Author: Will Horton
Study: HCP Young Adult
Author: Jenn Elam
Each NIMH Data Archive cluster listed above accepts and shares data delineated by their relevant research communities, but their infrastructure and procedures for requesting access are shared in order to encourage interdiscplinary science and the aggregation of common data elements accross communities. Please note that some NIMH Data Archive sites continue to share functionality hosted on the National Database for Autism Research (NDAR) website. If you are not studying Autism Spectrum Disorder, you may still need to use the NDAR website to access certain features.
Login to begin. Contributors may wish to review the Data Dictionary or visit their Collection in the Data From Labs section or through their profile. Researching investigators can begin or continue to examine data using the various Query tools.
To begin sharing data or request shared data, the first step is to submit an account request. Although summary data can be examined without an account, you will need to request and complete the access request process to download item-level data. To work on a project submitting data as a contributor, simply request an account and NDA staff will be in touch to begin the process.